Comments: 28
myqkiio [2019-07-18 13:24:22 +0000 UTC]
I have it since I'm 4.
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TattooRyss [2011-01-12 06:26:53 +0000 UTC]
I have Alopecia Universalis. I've had it for a little over a year and all of my hair is still in the process of falling out. Thank you for a stamp!
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TattooRyss In reply to dream0writer7 [2011-01-12 21:04:32 +0000 UTC]
I'm actually relieved I got it as an adult, because I am comfortable with who I am now, whereas when I was younger I was really shy and insecure. I think it's amazing how it can affect anyone at anytime.
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sha-nisu In reply to dream0writer7 [2010-12-27 07:03:11 +0000 UTC]
There are camp that have other people who also have alopecia?
Yeah, I understand. They can get very annyoing and itchy. I only were them to school. If only people would make fun or pick on me about it I would go to school in my bandana. But sadly, people have so I wear wigs. Im hoping to get some confidence to not let it bug me and be able to walk around or go somewhere without wearing a wig or bandana
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myqkiio In reply to sha-nisu [2019-07-18 13:25:50 +0000 UTC]
For me, there was a teacher in school that thought it was not a real disease and that I just pulled my hair or something.. So, she'll always take my bandana away.. A real jerk.
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sha-nisu In reply to dream0writer7 [2010-12-27 07:15:54 +0000 UTC]
Oh I wish I knew about this camp ealier.
Im hoping for a regrow too. And Im hoping they'll find a cure or a good treatment someday.
Im really happy I get to talk to someone who also has alopecia like me. I havent met anyone else who has it were I live. So I dont really have anyone I can relate to about it. So thank you for talking to me about it C:
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sha-nisu In reply to dream0writer7 [2010-12-27 07:27:29 +0000 UTC]
Oh cool! C:
Thanks, I'll go look it up.
Alright I will, thank you so much again <3
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ClassicVampFan [2010-12-27 01:48:03 +0000 UTC]
Hey, i also hav Alopecia since i was 2 and a half. Do u wear anything on ur head?
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ClassicVampFan In reply to dream0writer7 [2010-12-27 05:37:20 +0000 UTC]
I agree completly. I usually wear wigs but im going to try and not wear them becuz i use tape to stick the wig to my head. It hurts to bad i got to stop wearing them.
Wat kind of Alopecia do u hav?
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ClassicVampFan In reply to dream0writer7 [2010-12-27 06:20:47 +0000 UTC]
ya me too i had no hair anywhere except a little bit on my head, then wen i got to 6th grade i got eyebrows & eyelashes. Now in 8th grade nothings changed
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ClassicVampFan In reply to dream0writer7 [2010-12-27 07:10:58 +0000 UTC]
ik exactly!!!
I think bcuz like no one knows about it, even though lik 4 MILLION people in the USA have it. Like wtf?
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NizzleFOshizzle [2010-06-20 07:56:05 +0000 UTC]
had it since birth.
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Juliabohemian [2010-04-08 07:54:28 +0000 UTC]
I have a friend with this. I don't think it presented until she was in her teens. But she shaves her head and wears wigs.
She has like 40 wigs, in every style and color you could imagine.
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dream0writer7 In reply to Juliabohemian [2010-04-08 12:29:57 +0000 UTC]
Hmmm, weird. Small world, I guess. Yeah, I hear of a lot of people getting it in their teens. Or like 25-30. I don't really know a lot of people who have had it since childhood like I have. I know of a few, but that's supposed to be the more popular age.
I only have 1 wig, and I don't even wear it. I imagine it's because it's the wrong cut and fit on me, so I mainly wear those head scarf things.
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